Draft material to appear in Getting Pregnant When You Thought You Couldn't (Spring, 2001)
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Helane Rosenberg and Yakov Epstein
Get In Touch With Your Feelings
The most overwhelming characteristic of infertility is how stressful it is. It's stressful because you never know how long it will last. It's stressful because it's unexpected. It's stressful because it makes you feel different and because treatments are physically demanding and often very expensive.
Different people respond differently to infertility-related stress. A rich collection of reactions can be found in Infertility Bulletin Board discussions. Throughout this book we will share some illustrative "postings". We encourage you to visit some of these forums whose addresses can be found in the glossary of this book.
Researcher Margarete Sandelowski, a professor in the School of Nursing at the University of North Carolina at Chapel Hill, has investigated the emotional responses of infertile women. She reports that some infertile women describe the central experience of infertility to be one of ambiguity. They are not sure why they are infertile. They aren't clear if they should try a different treatment or change doctors. They don't know when or even if they will ever have a baby. They are confused.
One executive sent this posting to participants on the INCIID emotional issues bulletin board which we moderate.[ii] "I cannot believe what infertility treatment has done to my mind. I just got started (this is my first medicated cycle), and I find that I have a hard time thinking about anything else. I mean, today I was sitting in a Board of Directors meeting and caught myself thinking, 'I don't feel any side effects from the meds. My breasts are not tender.' and on and on. Then I thought, 'Oh my God, I have really lost it! What would these people think.' ????!!!!!!!!"
Our client, Phyllis, also fits the "confused" profile perfectly. The thoughts that wind through her mind reflect her confusion: "Every month I can't stand the wait. Maybe this insemination will work. Should I have a laparoscopy? Should we just go on vacation? Should I forget about having my own baby and adopt?"
Nobody knows why Phyllis can't conceive. She just wishes that some doctor would tell her that she'll never get pregnant. Then she thinks she would know what to do next. But maybe not.
Other infertile women focus on the alienation of their experience.[iii] They feel different from all the other women who get pregnant and have babies. They feel singled out and stigmatized by the infertility label. They can't talk to women with children; they can't talk to single women; they can't talk to voluntarily childless women. They feel like they just don't fit in. They feel isolated and alone.
Maya expresses her stigmatization poignantly in this Bulletin Board posting. "I've just come back from the hairdressers. The lady in the chair next to me was pg[iv] . and all the time her (sic) and my hairdresser and her hairdresser talked about the baby. I found out all about how she had fallen pregnant just four weeks after getting married, how she was going to a dinner dance next week and could not find any suitable clothes because she was too large, how she was worried people would think she was fat not pregnant etc. etc. The whole time they kept trying to include me into the conversation, and as I was the only non-mother, they kept saying 'you'll understand some day'. It was only that I had a highlighting cap on my head that stopped me from walking out of the hairdressers then and there, and I found it so hard not to burst into tears and to sound interested and happy for the lady. Apart from feeling the obvious jealousy towards this woman, although I wish her every luck with her pg, I just felt so alone and excluded. It feels like there is this magical club that once you become a mother you suddenly become enlightened. . .I can't help but feel like I'm an outsider. Am I strange to be feeling like this?"[v]
Arlene is another one of those who feels "desperately different." Everyone around her seems to be pregnant or wheeling a baby carriage. Every weekend at her synagogue, there's another baby naming. Arlene feels left out. "I am not like my sisters," she says. "They both got pregnant. I'm not like anyone in the whole world."
Time is the overwhelming aspect of other women's infertility experiences. They feel that their biological clock is running out. They respond by rushing through treatments or by changing doctors. They dwell on the past and are anxiety-ridden about the future. They think about themselves only as "ovulators" and "menstruators." Nothing else counts for them. All they can focus on is that they better get pregnant soon because time is slipping away.
Debby can't seem to think of anything else but the fact that she is 41 and not yet pregnant. She laments her five-year relationship with Freddie. "I wasted so much time," she says. "I don't have many months left." She explains that she is going to two different doctors this week to get their opinions. She is overwhelmed by her sense of impending doom -- menopause and the end of the road. Time is her primary stressor.
Infertile people say they feel anger, jealousy, repulsion or disgust. Misty's posting on the INCIID emotions bulletin board says it all.[vi] "I completely understand everyone's discomfort/anger/jealousy over all the pgs and charming cherubs swarming around us. It's really uncomfortable for me to face my own feelings in my own life. This weekend I saw my two best friends. It was just the five of us--they brought their adorable sons, born five days apart, now nine months old. Of course those sweet little boys were the center of attention! Why shouldn't they be--they are adorable. There was much discussion of their eating, teething, sleeping habits, etc. Lots of photos and videos of the two boys together. My friends are the souls of consideration, kindly asking about my fertility treatments, purposefully turning the conversation away from the babies so that I wouldn't feel bad. I felt like a freak, weird and childless. I also felt so jealous that they had their sons together--though they both have always been very loving and inclusive toward me. But even so I felt bad!!!! At one point, my closest friend said--trying to make me feel better: 'Why are you putting yourself through all this stress--you don't need a baby to have a meaningful life', as she bounced her son on her knee. She gets pg without even trying, and has three children. She doesn't understand what it's like for me to wonder if I'll ever have the chance to be a mother--her babies were all unplanned." Like Misty, you too may feel this way. In fact, you may feel grief, depression, loss, confusion -- all sorts of negative and potentially debilitating emotions. Despite the difficulty, you must face your emotions and acknowledge them.
Often the shock of infertility can make people report that they are disconnected from themselves, or completely unaware of their feelings. Find and acknowledge your innermost emotions, for these feelings may be preventing you from getting beyond the obvious sadness and grief of infertility. Author Niravi B. Payne, M.S. in her 1997 book The Language of Fertility[vii] suggests that women experiencing infertility become aware of these negative emotional issues and work to counteract them. Remember, in terms of infertility, all emotions are valid, even though you may never have experienced feelings like these before. At one time or other, everyone experiences emotions that surprise them.
You might feel angry. At whom are you angry? There may be no clear target. People who believe in God may feel angry at Him. Others focus their anger on abusive or neglectful parents or on women who choose to abort their pregnancies. Others prefer not to focus their anger on an external target. Instead, they turn their anger inward. They get angry at their bodies for failing to make babies. When people turn their anger inward, they become depressed.
You might feel jealous. Some people say they feel jealous of parents or pregnant women. They envy the ease with which friends get pregnant. They are even jealous of their previously infertile friends, even though they truly want their friend to have a baby. Your feelings may confuse you. You may feel repulsed when your friend asks you to hold her baby. You wonder, "How can I, who so much loves babies and wants one, feel repulsed by this innocent little creature in my arms?"
Also, you may feel disgusted with yourself because you feel so inadequate. Month after month, you fail to get pregnant. Looking in the mirror, you notice how the fertility drugs make you appear pregnant. What a shame. You have a body that looks pregnant but isn't.
All, or at least some, of these and other emotions will be part of your life. Getting in touch with these feelings ultimately will help you become a happier person despite your infertility. You can begin to combat negative feelings by learning to relax. The progressive relaxation and breathing exercises in the Getting Pregnant Workout in Chapter 2 are designed to help you feel calmer. The Workout's guided imagery exercises in the next chapter can help you "go away" from your problem and give your mind time to heal itself.
Dr. Alice Domar who directs the Women's Health Program in the Division of Behavioral Medicine at Harvard Medical School has created the Mind-Body Program for Infertility with branches throughout the United States. The Mind-Body program's approach is very similar to the one we advocate in this book. Domar points out that her client learned "from day one that our program was not designed to increase her odds of pregnancy. Indeed, our program was designed to get her mind off pregnancy. The purpose was to get her life back-to take her off the roller coaster of rising expectations and dashed hopes." Domar's program does an excellent job of helping her clients do this. For those of you who cannot get to the location of her program, we offer the activities in this book to achieve the same goal. [viii]
After you get in touch with your negative emotions, realize there comes a time to move beyond them and eventually replace them with positive feelings. Emotions that are perfectly valid at one time may hinder you from exploring options at another time. Of course, there is no rule about how long you can expect to feel overwhelming sadness or anger or jealousy (and these emotions will probably never leave you entirely), but at a certain point in your infertility diagnosis and treatment, you must allow yourself to get past what you are feeling so you can move on.
Some clients who come to us are already in touch with their emotions, so much so that it backfires and prevents them from seeking proper, productive treatment. They are grieving and feel helpless about their loss. "This isn't my fault," they say to themselves. "I'm not responsible for what is happening to me." While it's true that the fault is not theirs nor are they responsible for their condition, they nevertheless feel trapped by their debilitating emotions. They are fixated on negative thoughts, and their non-action triggers a form of guilt for failing to become more involved in their treatment. This, in turn, makes their negative feelings more intense.
Either case -- failing to acknowledge your feelings or feeling your emotions too much -- has a strong effect on whether you will allow yourself to try to conquer your infertility and get pregnant when you thought (and felt) that you couldn't. Getting in touch with your feelings, giving yourself time to experience them, and then moving past your pain into a new, more empowered phase of infertility-coping is the goal of the Getting in Touch with Your Feelings Pointer.![]()
[i]. Sandelowski, M. (1987) The Color Gray: Ambiguity and Infertility. IMAGE: Journal of Nursing Scholarship, 19, 2, 70-74.[ii]
6 Emotional Bulletin Board Archives, International Council on Infertility Information Dissemination, December, 1998.
[iii]. Sandelowski, M. (1986) Women's Experiences of Infertility. IMAGE: Journal of Nursing Scholarship, 18, 4, 140-144.
[iv] 8 Posters on Internet Bulletin Boards frequently use abbreviations. This helps them write rapidly but also creates the sense of a shared community of "insiders" who have their own secret communication system. If you are a part of this group you know this inside information. In this posting, pg refers to pregnant. In our chapter on on-line infertility resources we will discuss various abbreviations commonly used.
9 Emotional Bulletin Board Archives, International Council on Infertility Information Dissemination, December, 1998.
[vi] Emotional Bulletin Board Archives, International Council on Infertility Information Dissemination, December, 1998.
[vii] Payne, N (1997) The Language of Fertility. New York: Crown Publishers.
[viii] Domar, A. and H. Dreher (1996) Healing Mind, Healthy Woman New York: Henry Holt & Company, p. 229.
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