ACKNOWLEDGEMENTS

The authors thank all of those anonymous individuals who took the time to read and complete the extensive survey posted on the INCIID website.

  





Table 1    Demographic Characteristics of OO’s and AO’s *

 

Characteristic

OO

AO

P value

% with annual household Income over 75,000

38%

52%

p=.006

Mean Age

31.4 ± 5.6

32.3 ± 4.9

P=.08

% who are female

99%

99%

n.s.

% who are married

98%

94%

n.s.

Mean # months married

59.1 ± 39.8

63.1 ± 45.4

n.s.

Mean # months trying to conceive

32.7 ± 28.0

28.9 ± 20.7

n.s.

% with no college education

15%

3%

p=.001

Have been pregnant

57%

64%

n.s.

Have given birth to healthy baby

10%

15%

n.s.

Have ever miscarried

28%

45%

p=.001

Have ever had an Ectopic pregnancy

7%

8%

n.s.

Have ever adopted

4%

3%

n.s.

% whose occupation was “homemaker

20%

12%

p=.045

% knowing of a RESOLVE Inc. chapter within driving distance

66%

78%

p=.048

% with RESOLVE Inc. Chapter within driving distance who attend meetings

9%

14%

p=.075

Mean U.S. dollars spent on diagnosis and treatment (out of pocket)

$4,880 ± $7,932

$4,966 ± $11,226

n.s.

% who have no insurance coverage for infertility

28%

12%

p=.000


Table 2: Diagnostic and Treatment Information

Diagnostic tests ,Diagnoses and treatments

OO

AO

P value

% Currently undergoing diagnosis or treatment for infertility

75%

77%

n.s.

% have done hormonal testing

73%

73%

n.s.

% have had cervical mucus testing

31%

37%

n.s.

% have used ovulation predictor kits

72%

76%

n.s.

% have had a hysterosalpingogram

54%

66%

p=.01

% whose partner has had a semen analysis

70%

74%

n.s.

Diagnosis: PCOS

21%

11%

p=.003

Diagnosis: endometriosis

10%

16%

p=.053

Diagnosis: Male Factor

24%

25%

n.s.

Diagnosis: Tubal Factor

9%

11%

n.s.

Diagnosis: Ovulatory Problem

34%

31%

n.s.

Diagnosis: Uterine Factor

3%

5%

n.s.

Diagnosis: Unexplained Infertility

27%

22%

n.s.

Problem: Recurrent Miscarriage

12%

14%

n.s.

% have had an intrauterine insemination

36%

36%

n.s.

% have had endometriosis surgery

14%

14%

n.s.

% have done an IVF, GIFT, or ZIFT procedure

18%

19%

n.s.

% somewhat or very dissatisfied with treatment

24%

14%

p=.015

 


Table 3: Mode and consequences of Internet participation

Mode of Internet Participation

OO

AO

P value

Mean # total hours per day on Internet

2.36 ± 1.38

2.07 ± 1.33

P=.026

Mean # infertility hours per day on Internet

1.58 ± 1.02

1.32 ± 1.02

P=.01

% not participating in any INCIID medical boards

16%

20%

n.s.

% not participating in any INCIID support boards

29%

43%

p=.001

% who visit the (INCIID) general Infertility medical board

65%

53%

p=.008

% who visit the (INCIID) miscarriage medical board

17%

24%

p=.043

Get a great deal of support from medical boards

46%

28%

p=.002

Internet forums are extremely helpful for learning how to deal with physicians

46%

32%

p=.03

Get a great deal of support from medical boards

46%

28%

p=.002

Internet forums extremely valuable for sharing news about own treatment

65%

49%

p=.009

Internet forums valuable for allowing patient to share her signs and symptoms

74%

60%

p=.002

Internet forums are extremely helpful when patient feels depressed

61%

44%

p=.002

Internet forums give patients “permission” to avoid awkward social situations

31%

23%

p=.045

Internet forums support patient’s inclination to avoid talking with “fertile others”

46%

30%

p=.001

I get a great deal of useful medical information from medical board visits

53%

40%

p=.051

I switched from an OB/GYN to a reproductive endocrinologist

28%

19%

p=.024

I learned that men and women have different feelings about infertility

40%

32%

p=.047

Learned that “I am not crazy” (for feeling and acting as I do)

56%

45%

p=.019

I have become less inclined to talk to my partner

22%

7%

p=.000

 

 


Table 4: Depression, Stress, Satisfaction, Worry, Support, and ability to cope with infertility

Depression, Stress, Support, and ability to cope with infertility

OO

AO

P value

Mean Beck Depression Inventory score

12.90 ± 8.44

9.94 ± 8.16

p=.000

Mean Stress scale score (LCU between 0 and 100)

65.08 ± 20.77

60.92 ± 22.52

p=.039

% with moderate or severe depression

40%

27%

p=.000

How educated about infertility (1 most to 4 least)

2.01 ± .79

1.86 ± .73

p=.03

How able to identify own feelings about infertility (1=most to 4=least)

1.99 ± .83

1.84 ± .70

p=.036

How able to challenge your unreasonable or unrealistic views about infertility

2.08 ± .75

1.90 ± .77

p=.019

How able to work as a team with your partner to support one another through infertility

1.94 ± .88

1.59 ± .74

p=.000

How able to be an active consumer and partner to your physician in your infertility treatment

1.72 ± .78

1.59 ± .65

p=.048

How able to “hang in” despite setbacks as long as you have the resources to do so and your goal is still to get pregnant

1.86 ± .76

1.72 ± .67

P=.032

How much emotional support do you feel you get from your spouse

1.82 ± .81

1.49 ± .69

P=.000

How much emotional support do you feel you get from your parents

2.27 ± .1.03

2.02 ± .89

P=.006

How much emotional support do you feel you get from your in-laws

2.79 ± 1.10

2.58 ± 1.05

P=.065

How much emotional support do you feel you get from your friends

2.22 ± .93

1.80 ± .74

P=.000

How much emotional support from other infertile couples

1.65 ± .88

1.39 ± .58

P=.001

How much do you worry about your health (1=all the time to 5=hardly ever)

3.19 ± 1.29

3.50 ± 1.17

P=.007

How much do you worry about your relationship with your spouse

4.00 ± 1.26

4.36 ± 1.04

P=.001


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